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So.....when your feeling down and blue and sorry for yourself, please click on this link for inspiration.  He has some VERY GOOD WORDS OF WISDOM..........
 
9 News article of man who died of CRPS complications

Local man dies from debilitating disease

Below are the links to articles published by Dr. Sean Mackey at Stanford medical center.  Please take time to read them.  This is where we will be funding some of our research grant money.  Pretty neat stuff on the horizon.  Don't give up hope.....

 


    
NYT Magazine 2006.05.14.pdf 6.8 M  [ application/pdf ]   Download
Learned Volitional Control Over Brain fMRI Activation and Pain.doc 653 k  [ application/msword ]   Download
Stanford Pain Center.doc 1.3 M  [ application/msword ]   Download

This doctor is doing a study for males with CRPS and sexual function/dysfunction.  Please feel free to contact him if you are interested.

 

Dear member,

My name is Dr. Dan Justo. I am a physician from Tel-Aviv, and I am conducting a study on the quality of life and sexual dysfunction of men with CRPS/RSD of the lower extremities.

If you are willing to fill several questionnaires on these issues, I will be more than grateful.

Please contact me by email (justo1@bezeqint.net) or by phone (+972-52-4266739).

Thank you.

Dr. Dan Justo
Sourasky medical center
Tel-Aviv
Israel

Senate approves Dahl’s RSDS awareness legislation

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SPRINGFIELD, Ill. – The Illinois Senate has gotten behind an effort to raise public awareness of a painful neurological disorder.

House Bill 9, which State Sen. Gary Dahl (R-Granville) sponsored, passed on Tuesday, May 19, without opposition. It targets Reflex Sympathetic Dystrophy Syndrome (RSDS), a chronic syndrome characterized by severe burning pain, changes to bone and skin, tissue swelling and extreme sensitivity to touch that, if untreated, results in permanent deformity and severe pain.
 
If it becomes law, the legislation would create an educational program to raise public awareness of RSDS. The program would focus on the nature and possible causes of the syndrome, the risk factors that may contribute to its development, various treatment options, and the availability of treatment and support services.
 
Dahl took the legislative lead in advancing the measure at the request of Bea Danko, a Streator resident who lives with RSDS. The Senator met Danko at an RSDS support group meeting in 2008, and agreed to sponsor legislation to promote awareness of the syndrome – stressing the importance of early detection, diagnosis and treatment.
 
“Bea deserves enormous credit in moving this bill forward,” Dahl said. “When similar legislation I sponsored last year got bogged down due to political games, she kept the pressure on lawmakers to do the right thing. It was an honor to work with her in getting this legislation passed.”
 
The legislation is subject to appropriation by the General Assembly, though it would allow state government to accept private gifts, grants and donations to help pay for the program.
 
The measure now heads to the House for its final approval.

Letter from Dr. Sean Mackey

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